Monday, October 10, 2011

Part 3: 9 – 12 months, Learning to Trust Myself and How to Advocate for Kai

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Once we returned home from the hospital I began my extensive internet searching. I researched hypotonia every place I could think of. I join...
Friday, October 7, 2011

Pillow Pets

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Pillow Pets are awesome... Aside from being really cute, they are incredibly soft - which is what Kai always loved. Of course when I saw t...
Monday, October 3, 2011

Example spreadsheets used for in-home nursing

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When Kai qualified for in-home nursing care I was so excited. It was such a relief to finally have the help we needed. Kai received 16 hours...
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Tuesday, September 6, 2011

2011 Pediatric Bioethics Conference: A Parent's Perspective

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The Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital hosted its seventh annual international pediatric bioethi...
Wednesday, August 31, 2011

Part 2: 6 to 9 months, The Road to a Diagnosis is bumpy and long, but you have to start somewhere...

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Kai’s appointment for an evaluation to assess his physical abilities was set at the local therapy center in December. We had to wait a coupl...
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Monday, August 29, 2011

Yard Sale/Bake Sale/Silent Auction Fundraiser for Kai Lucas

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My friend Susan (she ran the daycare Kai attended as a baby) and my mom Roberta organized a fundraiser for our family. They wanted to r...
Thursday, August 25, 2011

In Loving Memory of Kai Samuel Lucas April 7, 2009 - August 14, 2011

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Kai Samuel Lucas passed away peacefully in his mother's arms on Sunday, August 14th, 2011. Although his life was short, it was filled w...
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