Helping Kai Play

Tuesday, September 6, 2011

2011 Pediatric Bioethics Conference: A Parent's Perspective

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The Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital hosted its seventh annual international pediatric bioethi...
Wednesday, August 31, 2011

Part 2: 6 to 9 months, The Road to a Diagnosis is bumpy and long, but you have to start somewhere...

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Kai’s appointment for an evaluation to assess his physical abilities was set at the local therapy center in December. We had to wait a coupl...
4 comments:
Monday, August 29, 2011

Yard Sale/Bake Sale/Silent Auction Fundraiser for Kai Lucas

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My friend Susan (she ran the daycare Kai attended as a baby) and my mom Roberta organized a fundraiser for our family. They wanted to r...
Thursday, August 25, 2011

In Loving Memory of Kai Samuel Lucas April 7, 2009 - August 14, 2011

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Kai Samuel Lucas passed away peacefully in his mother's arms on Sunday, August 14th, 2011. Although his life was short, it was filled w...
1 comment:
Wednesday, August 17, 2011

The Cord

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We are connected, My child and I, by An invisible cord Not seen by the eye. It's not like the cord That connects us 'til birth...
Wednesday, July 27, 2011

Acclaimed composer visits hospital, gets more than expected

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A Seattle Times Author, Nicole Brodeur, wrote a great article about a recent visit to the Children's Hospital in Seattle by Alan Menke...
Sunday, July 24, 2011

Part 1: Birth to 6 months, Concerns arise

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Kai Samuel Lucas was born on April 7 th , 2009. He was born with no complications at 9lbs 3oz and 21.5 inches long. He was such a big boy! ...
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Helping Kai Play
I started this blog because I want to help other parents play and care for their special needs children. My son, Kai, is now two years old and has been physically delayed in both fine and gross motor skills since birth. It has been a struggle for us to find products and toys for him. Kai has progressive hypotonia of unknown origin. This basically means that his muscle tone is very weak and is getting weaker for reasons unknown. I have bought many toys and assistive devices in trying to find things that he can use. I end up not being able to use about 90% of them because the buttons are too hard to push for him or the toy is to heavy, etc. I am hoping to use what I have learned to help other parents find toys that work for them. I also know it is a struggle to find products that work to help with transportation, eating at restaurants or bath time. I would love to hear from other parents about their experiences with certain products or what has worked well for them in general. I hope my blog is helpful to parents and everyone that knows of a developmentally delayed child. Thanks for reading!
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